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Question: Young Girl Cannot Feel Pain, Battles Rare Medical Condition CIPA | Good Morning America | ABC News first of this half-hour an inspiring story about a young girl with a condition so rare that no one not even experts know how many people it affects it's known as CIPA the inability to fill any physical pain and that twelve-year-old girl is using her diagnosis to make a difference GMA special contributor Cameron Mathison had a chance to spend some time with her here's her story what if pain the thing that parents try hardest to protect their children from what if that was the thing your child needed most it was how would I get baby yet but it's time went on the red flag started going up from the moment she was born Ashlyn blocker didn't cry when she was hungry or had diaper rash or even when at just eight months old her parents took her to the eye doctor when they put the diner I everyone just kind of gasped she had a big corneal abrasion across her eye they were astonished she wasn't in pain it was then her parents got the shocking devastating news their baby couldn't feel any pain it was scary because you know there weren't very many good outcomes that were involved with this condition people passing away from appendicitis because they didn't have the warning signs and bone infections I understand that the toddler years were some of the worst where she does continue to injure herself yeah the biting her burning her hands different things actually would wrap her hands up but athletic tape she'd be our little boxer photo after photo document injuries that pained her parents but not their little girl it wasn't like for you to send her out the door every day knowing what could happen without you there to watch it was rough at first a medical mystery that for ashlynn now 12 I love this room thank you I love the color is just a normal part of life how would you describe to somebody like me what it feels like that to not have any pain it's just me it's all I ever know you tell me what finger you feel it on okay hoping to learn more about this rare condition researchers at the University of Florida have been testing Ashland since 2004 and a few years ago were able to pinpoint the exact gene that affects how strongly pain signals are sent to the brain findings that may one day lead to new pain treatments there's a reason for everything and Ashley's here for a reason but for today Ashland just a normal 12 year-old girl who loves pageants and playing in the school bake [Music] and crocheting it's turned into a fundraising tool for an astonishing family project all of these you're gonna sell you gonna raise money from him yeah ashlynn had a dream one night that we started a camp for families like us I knew instantly what I was meant to do that dream became reality this past November when the family started camp painless but hopeful and hosted eight families also dealing with this incredibly rare condition what was it like to see Ashland associating having fun and playing with other kids was like it was an amazing amazing unforgettable time for sure I mean to actually be in a room and presence of someone who knows what we've been through I mean know your daily life your daily struggles and know you're not alone anymore I mean it was just amazing hear the music please maestro in exchange for my crochet lessons Ashland made me go back to my Dancing with the Stars days and teach your the waltz a special moment with a remarkable young girl that I will never forget when you daydream about the future what does that look like now Ashley I think it's gonna hold everything she wants it here We often think of pain as a negative thing and might imagine a pain-free world as something wonderful. How does this paragraph illustrate how pain is “useful”? Why is pain adaptive? How could a child with CIPA navigate their world safely, avoiding some of the dangers that pain might otherwise alert them to? Are there other negative states or emotions that you think serve a useful purpose?
This paragraph illustrates how pain is "useful" by explaining the dangers that a pain-free world could bring, such as not being aware of serious medical conditions like appendicitis or bone infections. Pain is adaptive because it serves as a warning sign to help us avoid harm or danger. A child with CIPA would need to be constantly monitored and taught to recognize potential dangers through other cues such as changes in body temperature or visual cues like redness or swelling. They might also need to wear protective equipment or take extra precautions when engaging in certain activities. Yes, there are other negative states or emotions that serve a useful purpose. For example, anxiety can signal a threat or danger and prompt us to take necessary precautions to protect ourselves. Sadness can also serve a purpose by allowing us to process difficult emotions and experiences, and often leads to personal growth and resilience.
March 20, 2023, 8:59 a.m.
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